Gadget’s Airstream Chronicles

So, I spent most of yesterday napping on and off.  Probably due to the fact that the night before sleep wasn’t my friend.  But last night I got a great night’s sleep!  Hooray!

What was different.  Well, I barely ate anything at all yesterday.  As I’ve said before, fasting helps.  Doesn’t help with hunger, but ah well.  Also, last night I slept on the couch.  The couch arms are higher, and I stacked my pillows on them, so slept more upright.  That helped plenty.  Finally, had a ton of Mylanta before bed. 

Thanks for all the responses.  I’ve gotten some interesting ideas from everybody.  One really good friend to my mom and I, Lyn (hi Lyn) has some great ideas.  I need to rethink how I’m approaching this.  Rather than just worrying about being static, I have an opportunity to “Dr. Hop”.  Find places with specialists, and go to each one.  Pick more research oriented spots.  Put together an introductory case history to present. And I have found other doctors who are more helpful toward EE&EG patients thanks to the Yahoo group.

Finally, Lyn also suggested the tapering might be too quick on the Entocort.  Yup, I think I figured that out too.  :)  But she pointed out something that hadn’t come to mind.  It took over a year to go through the melt down, and the fix might take as long too.  Very true.  I guess part of my wanting to taper off the medication is pretty simple.  I don’t want to be sick, and I’m impatient with it at times.  Much more interested in just being fully me again, rather than the current 75% me.  Where’d that other 25% go anyway.

So, now that I’m a little rested, and the gut has settled to a dull roar, I’m planning on looking around Bozeman today.  I was very excited to get here the other day, and I’m not going to waste my time hiding out in my silver bubble.  Plus I still have plenty of to-do’s (gotta get the oil changed).

I’ll get some photos around town.  I was also thinking of a ride up to Hyalite Canyon.  That was such a fantastic stop last time I was here, so I wanted to see it again.

Off to have some rice cakes for the morning.  Mmmmm.  Breakfast of champions, right?

This entry was posted on Friday, July 14th, 2006 at 7:46 am and is filed under Eosinophillic Esophogitis.You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.