Gadget’s Airstream Chronicles

So, a few days of keeping the Airstream locked up like a bubble has helped.  Go figure.  I’m pretty certain it was the air and open windows that were the causal factor in the disaster that took place the other night.

I was happy to get to talk to my family friend Lyn last night.  She’s got the mind of a researcher (probably because she was one), and she noted to me that several of my bad incidents over the past few months track with open windows and higher pollen counts.  Her take on it, my upper GI issues always seem to track with outdoor variables, not necessarily the food.  On reflection and review of the blog, she’s pretty much on the mark.

Additionally, she suggested I have a great opportunity, unlike my physician’s assistant who called back the other day.  Since I’m not rooted I can doctor hop.  I need to compile a full history (got most of it with me) and hit the research hospitals near universities.  Find someone with the mind of a researcher, not a McDonalds worker (the McDonalds worker is my added thought).

Today I’ll be doing some errands and finishing up the town things I needed to do.  Then I’ll be heading south.  While I’m here I will see the Tetons at minimum.  Always wanted to, so I should take the opportunity while it’s right in front of me.  But I’ll need to find another full hookup park.  See, now that it has become clear to me that outdoor environmental variables impact me strongly, I really do need to treat the Airstream like a bubble.  That means I need AC power for my Airconditioner and Hepa filter.  I don’t know what I’d do without my Hepa some days.

Also, I wanted to thank everyone for the concern and well wishes after the other night.  Got a bunch of comments here and a ton of e-mails too.  Thanks all.  I will get this worked out.  If you really want to help, check out the Cured Foundation’s Web Site. If you think I have had it rough sometimes, you should hear some of the stories of others with this disease.  I’m grateful that I’m functional enough to do this trip right now, and have no room to complain compared to other folks who don’t eat real food at all.  Be sure to check out the About Us section of Cured as well.

By the way, to address a few e-mails I’ve gotten….Bottom line, you should have seen me last year.  What’s happened on this trip seems trivial in comparison to how I was living last year.  It isn’t trivial of course, but I had bouts that lasted for weeks last year, and found myself unable to drive for months.  I am gaing ground with this.  But you’ve gotta keep one thing in mind, right now I’m looking at the prospect of having this thing for life as there’s no solution to it at present, only ways to manage it, and the management comes at a cost too.

So thanks for the well wishes, and don’t worry.  I just need to be mindful of what I can and can’t do (not used to doing that).  Windows open are a negative for the moment.  I’m looking forward to boondocking again some day, or even better, doing a long hike again.  Obviously I’ve got some more to do before those things will happen.

Off to downtown Bozeman now.  Need a new air pump for my tires.  Those battery powered ones are JUNK (died yesterday).  Then tomorrow I think I’ll set course for Jackson WY.  Gotta meet up with the Luhr family and get Eleanor her glasses (picked up yesterday for her).

This entry was posted on Saturday, July 15th, 2006 at 8:41 am and is filed under Eosinophillic Esophogitis.You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.